Our Baby Lorena was born with an Omphalocele
on January 16, 2008.
We did not know this was going to happen as it was missed with the ultrasounds.
Within her 1st 26 hours of her life and after all kinds of tests & the
operation we found out about more & more difficulties found in her body.
- The large omphalocele had her intestines as well as part of her liver in it coming out of her body.
- She also had a hole in her heart which may need to be operated when she is 2-4 years old.
- She had a cavity in her diaphragm called a Diaphragmatic Hernia in which part of the liver had grown into a curl.
- Her bowels had two outlets one to her bum and one to the navel.
- Her appendix was on the wrong spot too.
On the 2nd day she was operated successfully.
- the intestines & liver were put back inside her body.
- The diaphragm was fixed and the liver taken out of the cavity.
- Her bowels were operated on to remove the 2nd outlet to the navel.
- Her appendix was removed.
On the 5th day things went wrong and she almost died as her lung collappsed twice.
On the 7th day she got a big wound on her foot called an IV burn.
Following are days of recovery and struggles in feeding.
Below are the updates/emails with pictures I sent out to family & friends.
There is also some added stuff & pictures not send out before.
Send us your comments and we will post them
on our comments page for Lorena.
Nederlands onder aan sommige van de eerste paginas.
August 20, 2007 - First Ultrasound pictures - 19 weeks
November 28, 2007 - Last Ultrasound pictures - 37 weeks
December 23, 2007 - Christmas family picture (big tummy)
December 30, 2007 - Mommy in the hospital for non-stress test
January 15, 2008 - Baby room & cradle ready for baby's arrival
January 16, 2008 - Short baby announcement send out by dad
January 17, 2008 - Lorena's first 2 days
January 17, 2008 - Lorena's Surgery WARNING: Do not look if you can't handle seeing intestines!
January 19, 2008 - Lorena no longer in intensive care
January 20, 2008 - First feeding for Lorena
January 21, 2008 - Back in Intensive Care
January 22, 2008 - Baby Lorena stable again
January 23, 2008 - An other set back for Lorena
January 24, 2008 - Lorena.......a day to celebrate
January 25, 2008 - Baby Lorena feeding well
January 26, 2008 - A holding, hugging and healing day for Lorena
January 27, 2008 - Lorena being bottle fed
January 28, 2008 - Lorena's set back in bottle feeding
January 29, 2008 - Lorena's new NG tube
January 30, 2008 - Lorena gained 39 grams
January 31, 2008 - Lorena lost 50 grams today
February 1, 2008 - Lorena gained 25 grams
February 2, 2008 - Lorena feeding better
February 3, 2008 - Lorena's belly button
February 4, 2008 - Lorena is home!
February 8, 2008 - Lorena's first days home
February 11, 2008 - Lorena's first bath......finally!
February 14, 2008 - "O" baby Lorena
February 19, 2008 - Lorena's Baby shower & first appointments
February 26, 2008 - Lorena's 2nd RSV shot
March 4, 2008 - Lorena's spinal cord ultrasound
March 11, 2008 - Lorena's Kidney and bladder ultrasound
March 18, 2008 - Concerned about Lorena's weight
March 24, 2008 - Lorena back on the NG feeding tube
April 1, 2008 - Lorena still on oxygen
April 8, 2008 - Lorena's Heart
April 15, 2008 - A quiet week for Lorena
April 23, 2008 - Lorena's Surgery Pictures
April 30, 2008 - Lorena's Cardiology Appointment
May 22, 2008 - Lorena's Continued Feeding Difficulties
June 28, 2008 - Lorena is Cup Feeding
August 30, 2008 - Lorena's Summer
November 1, 2008 - Lorena's 1st Cold, Flue & Airplane Ride
January 3, 2009 - Lorena's 1st Christmas
I will post the next update in the 1st week of March 2009. So please check back at the beginning of March. If I am not to busy I may post a page about Lorena's 1st Birthday (January 16) a few days after her birthday.
Dutch/Nederlands
Onze Baby "Lorena" is geboren met een Omphalocele
We wisten niet dat dit zou gebueren omdat het gemist werd met de echos.
Op de 2de dag is ze met sucses geopereert.
Op de 5de dag ging het verkeert en is ze bijna overleeden.
Op de 7de dag kreeg ze een grote wond op haar voet dat hier een IV verbranding heet.
Verders volgen er dagen van geneezen en moelijkheden met het voeden.
Hier boven de updates/emails met fotos die ik naar family & vrienden verstuurden.
Er zijn ook nog meer fotos die ik niet eerder had verzonden.
Email ons gerust in het Nederlands voor de comments page.