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Lorena's Story |
Our Baby Lorena was born with an Omphaloceleon January 16, 2008.We did not know this was going to happen as it was missed with the ultrasounds. Within her 1st 26 hours of her life and after all kinds of tests & the operation we found out about more & more difficulties found in her body. - The large omphalocele (see http://en.wikipedia.org/wiki/Omphalocele ) had her intestines as well as part of her liver in it coming out of her body. - She also has a hole in her heart called an ASD which may need to be operated when she is 2-4 years old. ASD in short is a hole between the two upper heart chambers (see http://en.wikipedia.org/wiki/Atrial_septal_defect ) and the ultra sound last fall did not show any signs of closure. If it were to close it would typically do so before she is two years old, else it would mean heart surgery for her in the near future, something we'd rather avoid as it exposes her to a lot of other complications/risks. We would covet the prayers of you all for our little girl.
- She had a cavity in her diaphragm called a Diaphragmatic Hernia see ( http://en.wikipedia.org/wiki/Congenital_diaphragmatic_hernia ) in which part of the liver had grown into a curl.
- Her bowels had two outlets one to her bum and one to the navel. - Her appendix was on the wrong spot too. On the 2nd day she was operated successfully. - the intestines & liver were put back inside her body. - The diaphragm was fixed and the liver taken out of the cavity. - Her bowels were operated on to remove the 2nd outlet to the navel. - Her appendix was removed. On the 5th day things went wrong and she almost died as her lung collapsed twice and she was intubated and put on a ventilator to keep her breathing. On the 7th day she got a big wound on her foot called an IV burn. Following are days of recovery and struggles in feeding. Below are the updates/emails with pictures I sent out to family & friends. There is also some added stuff & pictures not send out before. comments page for Lorena.
Nederlands onder aan sommige van de eerste paginas.
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August 20, 2007 - First Ultrasound pictures - 19 weeks November 28, 2007 - Last Ultrasound pictures - 37 weeks December 23, 2007 - Christmas family picture (big tummy) December 30, 2007 - Mommy in the hospital for non-stress test January 15, 2008 - Baby room & cradle ready for baby's arrival January 16, 2008 - Short baby announcement send out by dad January 17, 2008 - Lorena's first 2 days January 17, 2008 - Lorena's Surgery WARNING: Do not look if you can't handle seeing intestines! January 19, 2008 - Lorena no longer in intensive care January 20, 2008 - First feeding for Lorena January 21, 2008 - Back in Intensive Care January 22, 2008 - Baby Lorena stable again January 23, 2008 - An other set back for Lorena January 24, 2008 - Lorena.......a day to celebrate January 25, 2008 - Baby Lorena feeding well January 26, 2008 - A holding, hugging and healing day for Lorena January 27, 2008 - Lorena being bottle fed January 28, 2008 - Lorena's set back in bottle feeding January 29, 2008 - Lorena's new NG tube January 30, 2008 - Lorena gained 39 grams January 31, 2008 - Lorena lost 50 grams today February 1, 2008 - Lorena gained 25 grams February 2, 2008 - Lorena feeding better February 3, 2008 - Lorena's belly button February 4, 2008 - Lorena is home! February 8, 2008 - Lorena's first days home February 11, 2008 - Lorena's first bath......finally! February 14, 2008 - "O" baby Lorena February 19, 2008 - Lorena's Baby shower & first appointments February 26, 2008 - Lorena's 2nd RSV shot March 4, 2008 - Lorena's spinal cord ultrasound March 11, 2008 - Lorena's Kidney and bladder ultrasound March 18, 2008 - Concerned about Lorena's weight March 24, 2008 - Lorena back on the NG feeding tube April 1, 2008 - Lorena still on oxygen April 4, 2008 - Lorena's Canadian Baby Photographer Pictures April 8, 2008 - Lorena's Heart April 15, 2008 - A quiet week for Lorena April 23, 2008 - Lorena's Surgery Pictures April 30, 2008 - Lorena's Cardiology Appointment May 22, 2008 - Lorena's Continued Feeding Difficulties June 28, 2008 - Lorena is Cup Feeding August 30, 2008 - Lorena's Summer November 1, 2008 - Lorena's 1st Cold, Flue & Airplane Ride January 3, 2009 - Lorena's 1st Christmas January 17, 2009 - Lorena's 1st Birthday April 1, 2009 - Lorena is Walking July 13, 2009 - Lorena Doesn't Need Heart Surgery October 9, 2009 - Lorena's Cerebellitis & Thyroid Problems January 28, 2010 - Update from Calgary - Lorena & Our Family December 16, 2010 - Lorena's Heart (NEW: finally posted May 16, 2011)
I am not sure when I will post the next update but probably not until the summer or the fall.
Dutch/Nederlands |
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| Lorena's Verhaal | |
Onze Baby "Lorena" is geboren met een Omphalocele
op 16 January 2008
We wisten niet dat dit zou gebueren omdat het gemist werd met de echos. Op de 2de dag is ze met sucses geopereert. Op de 5de dag ging het verkeert en is ze bijna overleeden. Op de 7de dag kreeg ze een grote wond op haar voet dat hier een IV verbranding heet. Verders volgen er dagen van geneezen en moelijkheden met het voeden. Hier boven de updates/emails met fotos die ik naar family & vrienden verstuurden. Er zijn ook nog meer fotos die ik niet eerder had verzonden.
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